We’re excited to share a new animated short featuring Ziggy the Zebra, the ECD community’s friendly mascot. In this brief video, Ziggy explains how the ECD Global Alliance hosts monthly online chats and webinars to help patients, caregivers, families, researchers, and medical professionals stay connected and informed.
These virtual gatherings provide a safe and welcoming space to discuss a wide range of topics related to Erdheim-Chester Disease, including diagnosis, treatment, symptoms, and quality of life. They also offer an opportunity for community members to build lasting relationships and find support through shared experiences.
If you have not yet registered with the ECD Global Alliance, we encourage you to do so at www.erdheim-chester.org to receive notifications about upcoming chats relevant to your role.
Watch now to learn how the ECD community connects from around the world through conversation, support, and shared understanding.
The Erdheim-Chester Disease Global Alliance (ECDGA) does not provide medical advice, diagnoses, or treatments. All content is for informational purposes only. Please consult with a healthcare provider for medical concerns.