by Steven May Jr | Aug 23, 2025 | News
https://test.erdheim-chester.org/wp-content/uploads/2025/08/A_realistic_cinematic_202508181055_yfmfz-1.mp4 The Erdheim-Chester Disease Global Alliance (ECDGA) is excited to introduce our newest team member—Ziggy the Zebra! Ziggy isn’t your average zebra. Ziggy...
by Steven May Jr | Aug 12, 2025 | News
The Erdheim-Chester Disease Global Alliance (ECDGA) is pleased to announce the 2025 Call for Letters of Intent (LOIs) for research projects focused on Erdheim-Chester Disease (ECD) and related adult histiocytic disorders. This annual funding opportunity aims to...
by Steven May Jr | Jul 31, 2025 | News
The ECD Global Alliance (ECDGA) is proud to announce the release of the complete video recordings from the 2025 Annual Patient & Family Gathering in Barcelona. If you were unable to attend in person or would like to revisit the incredible insights shared by global...
by Steven May Jr | Jul 29, 2025 | News
Please join me in welcoming Diane Schriner as the new ECD Global Alliance President. Diane has been an integral part of the ECDGA Board of Directors since 2018 and has served as Vice President since 2021. During that time, she has exemplified extraordinary compassion,...
by Steven May Jr | Jul 3, 2025 | Social Posts
The ECDGA Virtual Fun Run/Walk/Roll is gaining global traction, with participants already joining in from across the United States and beyond. We recently added Canada, Great Britain, New Zealand, and Australia and now we’re calling on supporters from around the world...
