Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
Search Our Blogs
Recent Posts
- Ziggy the Zebra Talks About Staying Connected
- Caring for Yourself During the Holidays: Support for ECD Patients and Families
- Abstracts Due February 1 for the 2026 ECDGA Medical Symposium
- ECDGA End-of-Year Giving Campaign Double Your Impact Before December 31!
- Registration Now Open for the 2026 ECDGA Medical Symposium Advancing ECD Care Together – Join Us in Birmingham, AL