NIH film documenting Rare Disease Day at the NIH on February 29, 2012. The first part of the video shows an ECD display and one of our members talking with Dr. Juvianee Estrada-Veras.
Search Our Blogs
Recent Posts
- Ziggy the Zebra Talks About Staying Connected
- Caring for Yourself During the Holidays: Support for ECD Patients and Families
- Abstracts Due February 1 for the 2026 ECDGA Medical Symposium
- ECDGA End-of-Year Giving Campaign Double Your Impact Before December 31!
- Registration Now Open for the 2026 ECDGA Medical Symposium Advancing ECD Care Together – Join Us in Birmingham, AL