by Steven May Jr | Oct 1, 2025 | Social Posts
Left to right: Jerome Henson (ECDGA), Laura Eurelings, MD (Erasmus MC University Medical Center), Diane Schriner (ECDGA), discussing the poster, “Anti-IL-6 Therapy in Erdheim-Chester Disease.” Conversations like these help drive forward the scientific understanding of...
by Steven May Jr | Oct 1, 2025 | Social Posts
Left to right: Jerome Henson (ECDGA), Fernando Gotz (OR Association), Diane Schriner (ECDGA), Claudio Di Girolama(HA – Canada), discussing the poster, “Global Histio: The international Patient Advocacy Group Coalition for Collaboration in Histiocytosis.” This project...
by Steven May Jr | Sep 22, 2025 | Social Posts
The Erdheim-Chester Disease Global Alliance (ECDGA) is issuing a final call for Letters of Intent (LOIs) for the 2025 research grant. The application period closes tomorrow, so there is only one day left to submit. This annual funding opportunity supports innovative...
by Steven May Jr | Aug 5, 2025 | Social Posts
The Erdheim-Chester Disease Global Alliance (ECDGA) is pleased to announce that the recording of our recent Spanish-language webinar is now available to view on our YouTube channel. This special session, held on July 24, 2025, features Dr. Xavier Solanich from...
by Steven May Jr | Jul 8, 2025 | Social Posts
We’re standing just shy of the finish line—$24,017.57 raised of our $25,000 goal. That means we’re only $982.43 away from achieving something powerful. This campaign has always been about more than a number. It’s about the strength of our community. The determination...
by Steven May Jr | Jul 5, 2025 | Social Posts
Time is ticking. The ECDGA Get Ready to Run, Walk & Roll for Hope Fun Run ends on July 15, and we are so close to our goal. With $20,999.62 raised, we are just a few steps away from reaching our $25,000 target—but we need your help to get there. Every registration...
