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Global nonprofit with local roots fight rare disease

Global nonprofit with local roots fight rare disease

by Asmaa Javed | Dec 31, 2016 | Press Releases

The Erdheim-Chester Disease Global Alliance supports those affected by Erdheim-Chester Disease out of DeRidder, Louisiana
DeRidder Non-Profit in Paris During ECD Awareness Week

DeRidder Non-Profit in Paris During ECD Awareness Week

by Asmaa Javed | Dec 31, 2016 | Press Releases

The Erdheim-Chester Disease Global Alliance supports the rare disease by hosting events abroad.
“A Leap Forward in Rare Disease Treatment” Erdheim-Chester disease community collaborates to change the course of a disease

“A Leap Forward in Rare Disease Treatment” Erdheim-Chester disease community collaborates to change the course of a disease

by Asmaa Javed | Dec 31, 2015 | Press Releases

A film was created to increase awareness of ECD and provide hope to those fighting this disease.  A special thanks to the video participants and Trovagene, Inc. for sponsoring the film.
Louisiana Governor proclaims annual Erdheim-Chester Disease awareness week

Louisiana Governor proclaims annual Erdheim-Chester Disease awareness week

by Asmaa Javed | Dec 31, 2015 | Press Releases

Louisiana is the ECDGA’s office location and the state has issued a Proclamation for its first-ever ECD Awareness Week.
SOBI, Inc. Awards Erdheim-Chester Disease Non-Profit Grant for Care Center Creation

SOBI, Inc. Awards Erdheim-Chester Disease Non-Profit Grant for Care Center Creation

by Asmaa Javed | Dec 31, 2015 | Press Releases

First of its kind – ECD Referral Care Centers were made possible in part by pharmaceutical funding.
International Erdheim-Chester Disease Conference

International Erdheim-Chester Disease Conference

by Asmaa Javed | Dec 31, 2015 | Press Releases

TMC Houston News announces the 3rd Annual Symposium in their events section.
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