by Steven May Jr | Dec 16, 2025 | News
We’re excited to share a new animated short featuring Ziggy the Zebra, the ECD community’s friendly mascot. In this brief video, Ziggy explains how the ECD Global Alliance hosts monthly online chats and webinars to help patients, caregivers, families, researchers, and...
by admin | Dec 16, 2025 | News
The holiday season is often filled with celebration, connection, and meaningful traditions. But for individuals living with Erdheim-Chester disease (ECD), this time of year can also bring unique challenges—fatigue, stress, disrupted routines, medical appointments,...
by publer | Dec 15, 2025 | News
Reminder: Abstract Submissions Close February 1, 2026 The ECD Global Alliance invites clinicians, researchers, and medical professionals to submit abstracts for consideration at the 2026 ECDGA Medical Symposium, taking place on May 1, 2026, at the Marnix E. Heersink...
by publer | Dec 11, 2025 | News
As 2025 comes to a close, the ECD Global Alliance reflects with gratitude on the strength and generosity of our incredible community. Because of your support, we continue to advance research, provide critical resources for patients and families, and expand awareness...
by admin | Dec 11, 2025 | News
The ECD Global Alliance is pleased to announce that registration is now open for the 2026 Medical Symposium, held at the Marnix E. Heersink Conference Center at the University of Alabama at Birmingham (UAB). Early bird registration is available until February 1, 2026....
by admin | Dec 11, 2025 | News
The ECD Global Alliance is excited to announce that registration is now open for the 2026 Patient & Family Gathering and Medical Symposium, to be held in Birmingham, Alabama. This important annual event brings together patients, caregivers, family members,...
