by Steven May Jr | Dec 16, 2025 | News
We’re excited to share a new animated short featuring Ziggy the Zebra, the ECD community’s friendly mascot. In this brief video, Ziggy explains how the ECD Global Alliance hosts monthly online chats and webinars to help patients, caregivers, families, researchers, and...
by Steven May Jr | Nov 28, 2025 | Social Posts
This year, your gift to the Erdheim-Chester Disease Global Alliance will go TWICE as far thanks to a generous $90,000 matching challenge. Your support fuels awareness, patient programs, and groundbreaking research. Stay tuned to learn how your impact can be...
by Steven May Jr | Nov 25, 2025 | News
https://test.erdheim-chester.org/wp-content/uploads/2025/11/export.mp4 Today, our friend Ziggy the Zebra is stepping up to help raise awareness and support for those living with Erdheim-Chester Disease (ECD) — a rare and challenging condition that needs more...
by Steven May Jr | Oct 1, 2025 | Social Posts
Left to right: Diane Schriner (ECDGA), Dr. Ronald Go (Mayo Clinic, Rochester), and Jerome Henson (ECDGA) discuss care strategies and research priorities. Dr. Go is a valued member of the ECDGA Medical Advisory Board.
by Steven May Jr | Oct 1, 2025 | Social Posts
Left to eight: Jerome Henson (ECDGA), Diane Schriner (ECDGA), Francesco Pegoraro, MD (Meyer Children’s University Hospital, Italy). Cross-border partnerships are essential in advancing the understanding of Erdheim-Chester Disease.
