by Asmaa Javed | Jan 2, 2020 | News
Foreign Language Instructions to Register for the ECD Conference in Barcelona on 26 May 2025 Open Chrome as your internet browser. Go to the registration page at – https://secure.qgiv.com/for/bpfg/event/barcelonapatientfamilygathering Click on the three vertical...
by Asmaa Javed | Dec 30, 2019 | Press Releases
The ECD Medical Symposium was hosted by Dr. Lorenzo Dagna at the IRCCS San Raffaele Scientific Institute, Vita-Salute San Raffaele University. The Milan, Italy event was held 10-11 July featuring scientific advances and collaboration from around the world as it...
by Asmaa Javed | Dec 30, 2019 | Press Releases
Over the last 11 years, Rare Disease Day has become iconic as the global campaign for raising awareness of rare diseases among politicians, clinicians, researchers, and pharmaceutical companies. This year’s theme is a testament to the challenges patients and families...
by Asmaa Javed | Dec 30, 2019 | Press Releases
Representatives from the ECDGA attended the Endocrinology Society’s annual conference in New Orleans to raise awareness of ECD among attending endocrinology specialists.
by Asmaa Javed | Dec 30, 2019 | Press Releases
The US Food and Drug Administration has granted a Breakthrough Therapy Designation to cobimetinib in the treatment of patients with histiocytic neoplasms (Erdheim-Chester Disease, Rosai-Dorfman, Langerhans Histiocytosis), who do not bear the BRAF V600 mutation. This...
