by Asmaa Javed | Dec 31, 2024 | Voices of ECD
Written by an ECD family with the intention to raise awareness. “Special thanks to Dr. Roei Mazor for his invaluable contributions to this article for its medical accuracy, and for his unwavering care and treatment of my dad over the past four+ years.” – Michael...
by Asmaa Javed | Dec 31, 2024 | Voices of ECD
Erdheim-Chester disease is not the same for all patients. By Tina Koslosky
by Asmaa Javed | Dec 31, 2024 | Voices of ECD
An Erdheim-Chester Disease family reports on the state of healthcare in a large region of Italy. By Mariangela Melino
by Asmaa Javed | Dec 31, 2024 | Voices of ECD
Losing her husband to Erdheim-Chester disease does not stop this caregiver from having hope for others still fighting. By Maria Assunta Di Pietro
by Asmaa Javed | Dec 31, 2024 | Voices of ECD
Some risks are worth taking in this story of the Erdheim-Chester Disease miracle baby. Alice Nilsen, is a 39-year-old Erdheim-Chester Disease (ECD) patient and mother to a beautiful little girl, Marie. Her story to a diagnosis and thereafter, is nothing short of a...
