by Asmaa Javed | May 2, 2025 | Webinar Recordings
The ECD Global Alliance (ECDGA) and the Histiocytosis Association co-host Beyond the Office Visit virtual education series, Part Two: Functional Nutrition & Wellness. During this session, Certified Health Coach and Certified Functional Nutrition Practitioner,...
by Asmaa Javed | May 2, 2025 | Webinar Recordings
Tim Facciola, Certified Personal Trainer & Movement Specialist, joins us in a conversation about incorporating movement and exercise into life when managing a chronic illness or a rare disease, such as Erdheim-Chester Disease.
by Asmaa Javed | May 2, 2025 | Webinar Recordings
Watch webinar on youtube Learn about the treatments used to treat Erdheim-Chester disease (ECD), what to expect over time and the side effects that may be involved. Ginny-Tyler Meadows is a clinical pharmacist serving the hematology/oncology clinics at The Kirklin...
by Asmaa Javed | May 2, 2025 | Webinar Recordings
Taking part in a clinical trial can have many benefits for the patient and the community. We hope this session will help you better understand clinical trials, how to talk to your doctor about trials, and leave you feeling prepared with the right resources.
by Asmaa Javed | May 2, 2025 | Webinar Recordings
Dr. Michael Girschikofsky from the Elisabethinen Hospital Linz explains ECD to German-speaking ECD patients and families.
