The ECD Global Alliance announces the launch of the Registry for Patients with Erdheim-Chester Disease led by Memorial Sloan Kettering Cancer Center (MSK), in New York, NY. The next step in building the registry database includes recruiting patients with ECD to participate. The primary investigator, Eli L. Diamond, MD, will lead the research team at MSK to collect patient data in order to assist all interested stakeholders in treating patients battling this rare disease.
ECD Patient Registry is Recruiting
